There are a lot of people who haven’t heard of fibromyalgia and those who have don’t always fully understand it; there are even those who think it isn’t real. A lot of people who are aware and do try to understand it make the mistake of thinking it’s all about pain.
When you are chronically ill it can be really difficult to cook and eat in a healthy way due to fatigue, pain and many other factors. It’s a journey I am on myself to try to get healthier and fitter in the best way I can. It’s certainly a struggle but I have come across a few things that can help.
I use numbered scales to describe how I am feeling on a daily basis in regard to my bipolar disorder and fibromyalgia for several reasons. I find it much easier to tell my support system how I am feeling: they have copies of my scales and I am able to just give them two numbers, so they know how I’m doing each day.
Hi all! My mood and pain levels are heading in the right directions so I’m very pleased about that, and feel a bit more like myself today.
Having an invisible illness and using mobility aids can be difficult in many ways. It can be hard to come to terms with the fact that you might need these things, and to finally make the decision to use them. On good days I can walk with no aids, but sometimes I need to use my walking stick, and other days I need to use my mobility scooter.
I had undiagnosed pain for a long time. The doctors did many tests and eventually referred me to a specialist. More tests were done, and when I sat down with the specialist, he looked me in the eye and said, “You have fibromyalgia.”
I would definitely say that I have a love/hate relationship with my bed.
Due to my medication side effects, fatigue from bipolar depression, and the pain and lethargy from fibromyalgia, I spend a great deal of time in bed.