Today is one of those dreaded days. I feel completely fatigued and I am really struggling to work (I work from home which I’m blessed to be able to do but on these days it’s hard to focus).
Facing the world with limited spoons,
Isn’t the life any of us would choose;
But we make the most of every day,
No matter what is thrown our way.
When it comes to fibromyalgia a lot of people who don’t have it or don’t completely understand it, don’t truly understand what I mean when I say I’m having a flare. They tend to think it’s ‘just’ a case of me being in pain and feeling tired, which are certainly symptoms but that isn’t what a flare is to me.
Today consisted of a visit to my psychiatrist which went as well as it can, I think. She’s a good one, and I’m blessed to have her. It’s hard to find good doctors in the mental health profession and I feel I have a good relationship with her.
I use numbered scales to describe how I am feeling on a daily basis in regard to my bipolar disorder and fibromyalgia for several reasons. I find it much easier to tell my support system how I am feeling: they have copies of my scales and I am able to just give them two numbers, so they know how I’m doing each day.
Having an invisible illness and using mobility aids can be difficult in many ways. It can be hard to come to terms with the fact that you might need these things, and to finally make the decision to use them. On good days I can walk with no aids, but sometimes I need to use my walking stick, and other days I need to use my mobility scooter.
I had undiagnosed pain for a long time. The doctors did many tests and eventually referred me to a specialist. More tests were done, and when I sat down with the specialist, he looked me in the eye and said, “You have fibromyalgia.”